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Don't miss next week's newsletter, bringing you the summer 2019 edition of Patient Experience Quarterly.  

We'll have comment pieces from Cancer Mum, and from Rachael Bull, whose illness takes her "down the rabbit hole" of a bewildering healthcare system.  Plus news of a new national patient leadership programme, and our usual round up of the latest and best in patient experience evidence from the last three months.  All this and more next week!

Inpatients speak out

The Care Quality Commission's Adult Inpatient Survey has now been running for 15 years, but as the CQC says, "every year brings a new perspective".  So what do this year's results show?

As always, there is good news.  Trust in doctors and nurses remains relatively high, most patients (over 90%) report that they had enough privacy, and communication between patients and staff remains a positive experience for most.  Patient satisfaction with hospital food has improved over the years, with the proportion of those saying that it was “very good” increasing from 19% in 2009 to 23% in 2018. 

Alongside this, however, are areas that consistently show poor patient experience, including waiting times, the quality of information and involvement around hospital discharge, and experience of integrated care.

Patients' reports of problems with waiting times have been corroborated by the House of Commons Public Accounts Committee, which has deemed it "unacceptable that less than half of NHS trusts meet the waiting times standard for elective treatment, and only 38% meet the standard for cancer patients". The committee is concerned that national bodies "appear to lack curiosity regarding the impact of longer waiting times on patient outcomes and on patient harm". 

Hospital discharge is a longstanding source of dissatisfaction for patients, with Healthwatch reporting back in 2015 (and many times since) on the problems.  

The survey also finds that "people’s experience of the integration of their care has got worse".  18% of respondents said they did not know what would happen next with their care when they left the hospital, and nearly a quarter of patients (24%) said they did not get enough support from health or social care professionals to manage their conditions after leaving hospital

The CQC concludes that "While last year we reported on a system still delivering improvements in patients’ experiences despite growing pressure, this year, the improvement is not sustained. In 2018, there is a lot of evidence to suggest that pressure on the system is having a real impact on patients’ experiences of care".

You can download the report via our website.
Inpatient evidence on tap

There is a wealth of evidence on the issues raised in the CQC's Adult Inpatient Survey.

To see specific results for Trusts near you, along with other relevant data, visit the Patient Experience in Trusts map.

For reports on patient experience of hospital waiting times, search "waiting times" here: 

For reports on patient experience of leaving hospital, search "discharge" here:  
This just in…
New evidence on all aspects of patient experience and involvement is being published all the time.  Check out our top picks from recent reports:

Adult Social Care Data and Cyber Security Programme.
Dialysis Transport. Finding a way together.
Crisis in Care: What Do MPs Think?
Free resources

Not a subscriber to the Patient Experience Library?  Don't worry - you can still get lots of free stuff from our website!  

Our quarterly Patient Experience magazine carries insightful comment from a range of contributors, as well as our top picks of recent reports on patient experience and patient/public involvement. 

Patient Experience in England is our annual overview of the evidence base, drawing on surveys and research from government bodies, health charities and academic institutions.  The evidence is broken down into manageable chunks, and research findings are grouped under key themes for ease of understanding. 

You can browse our Knowledge Maps to see how patient experience is being reported in your area.  

And if you want to wear your patient experience heart on your sleeve, you can download and print our posters and stick them on your wall.  Better still, post them to the Chief Executive of your local NHS Trust!
Do you know of a stand-out report on patient experience that people in CCG's, PALS teams and local Healthwatch should be reading?  If you do, and you'd like to see it featured in this newsletter, let us know! 
The Patient Experience Library offers unparalleled access to patient insight and experience with over 50,000 documents, including...
  • Patient experience reports from health and care charities and think tanks
  • Guidance on matters such as patient-centred commissioning
  • CQC inspection reports and patient survey results
  • All the reports from the local Healthwatch network
  • Quality Accounts from health service providers
  • Valuable archive materials from bodies such as LINk and the NHS Institute
For details of free services, pay as you go services and subscriptions, click here.
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