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Happy Thanksgiving and thank you to our amazing supporters for everything that you have done to help us have hope for the rest of our lives! CF one day will stand for cure found and we are on the way there. One day my day...
Just a fun pic of Dean above with some buddies on Halloween as they safely navigated the neighborhood as a food group 😂.

Latest on Dean

Dean is loving 5th grade and his basketball team and waiting patiently for football to start. We had a minor setback as the modulator med he was on for the last year was causing his liver enzymes to peak higher than his doc was comfortable with. We’ve adjusted the dosage of the med and continue to stay on top of the blood work to determine next steps. On the outside, as usual, you cannot tell what is happening; CF is such an invisible disease. He maintains his amazing positive attitude and just literally enjoys every single day. He doesn’t have much on his Christmas list this year but, like his sis, is saving for and hoping for an Australian labradoodle therapy dog. 😯 


We are so thankful for your continued giving. While we didn’t have many events this year, we had some sales and a CF Madness Event and will close the year with a Tucson CF a parade (formerly Great Strides). To make any end of the year donations, head over to

Much love and thanks, xoxo

Team Burns

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