Check out the latest Professional Enews from SUDEP Action.
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Dear Professional,

In our latest enews, read about Professor Martin Elliot’s lecture on SUDEP, where he highlighted its devastating impact and the vital need to continue making steps now to help prevent further deaths. We are now funding a clinical research trial of WADD – a wearable device that alerts people when someone with epilepsy stops breathing. Our safety tools were flagged in the International Neurology Journal as interventions which benefit the care of people with epilepsy. Also read about our epilepsy digital tool EpSMon which has now been backed by the NHS as one of only eight innovations under the Innovation Accelerator programme. EpSMon also received a positive review from the NIHR in their report on 'Emerging technologies for the diagnosis, treatment & management of epilepsy’. The app also won the Health Business Award for Healthcare IT!

Jane Hanna OBE, Chief Executive 
Professor Martin Elliot gave a lecture on 'Sudden Death in the Young; What a terrible waste' -  read
SUDEP Action safety tools flagged in international Neurology Journal as interventions which benefit the care of people with epilepsy read
Epilepsy self-monitoring app joins the NHS Innovation Accelerator programme read


Useful Resources and Links

SUDEP and Seizure Safety Checklist 
The check list is now available to health professionals

Epilepsy Self - Monitor 
EpSMon is now available for free download in the UK for Android and IOS here

Visit our Library for downloadable leaflets

SUDEP - The Global Conversation online resource


Click here for SUDEP research updates

Report a death to The Epilepsy Deaths Register

We offer confidential support to people bereaved by epilepsy via the support line
NIHR positively reviews EpSMon in 'Emerging technologies for the diagnosis, treatment & management of epilepsy’ report  read
SUDEP Action funds clinical trial of Wearable Apnoea Device (WADD) to stop deaths read
In memory of Charlie Burns, South Western Ambulance Service launches SUDEP Training Videos to reduce deaths read

Key Updates 

Our Annual Report for 2016 is now available here

SUDEP Training Resources 

Lecture by Professor Martin Elliot - Sudden Death in the young: a terrible Waste - video available here, a transcript of the lecture is also available here

Training videos created by SUDEP Action, SWASFT & the Burns Family. A series of SUDEP training videos are available here.

Sudden Unexpected Death in Epilepsy (SUDEP) and Seizure Safety training via the Royal College of General practitioners. This course uses video and case studies to illustrate various points in the clinical management of patients with epilepsy.
SUDEP Action & SUDEP Action Scotland are the working names of Epilepsy Bereaved. Registered charity number 1050459 (England & Wales), SC045208 (Scotland)
Our mailing address is: 12a Mill Street, Wantage Oxon OX12 9AQ


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