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Hello there,

In this issue, read about what you have achieved through supporting the charity. Thanks goes to Kt's Fund for funding and backing work in Cornwall that led to SUDEP Action sharing Neurology team of the Year 2016, for innovation to tackle epilepsy deaths. This British Medical Journal Award backs a positive structured approach to talking about risk, that has changed culture and practice. Support tools are what is needed to bridge the gap between guidelines and practice. Thanks to all our supporters who have been with the charity every step of the way. We need your support more than ever now. Thanks to all our fantastic fundraisers.

Please support our Champion4change Campaign, we are aiming for 100 MPs to sign our Early Day Motion calling for support for Safety tools, and to get as many GPs as possible taking up our free SUDEP and Seizure Safety e-learning produced with RCGP. The course covers issues relating to girls of childbearing age, and the safety tools which support a simple checking of risk for anyone over 16. SUDEP Action presented at a major conference – Partners Against Mortality in Epilepsy in Washington DC from June 23rd-26th.   
  
Jane Hanna OBE, Chief Executive

News

SUDEP Action & partners win Neurology Team of the year BMJ Award read more
 

SUDEP Action working with Partners Against Mortality in Epilepsy read more
.
SUDEP Action & RCGP launch SUDEP E-learning for GPs read more
Safe and sound? A systematic literature review of seizure detection methods 
read more
 
Champion4Change Campaign gains momentum with backing from 29 MPs read more 
 

Keeping pregnant women with epilepsy
safe read more
SUDEP Action highlights risk information & tools ESNA Conference
read more

Epilepsy Memorial Day online event brings together families bereaved by epilepsy read more
 

 

Features



Natalie’s Wing Walk in memory of her sister Kathryn read more
 

Students and teachers complete gruelling race in memory of Edward Vergette read more
 
John Coley's golf event raises funds for SUDEP Action 
read more

Gemma and Gareth run the Brighton and Edinburgh Marathons read more
 

United in Grief Walk raises awareness and funds for the charity read more
 

Tracy Stephens - a bereaved mum shares her Journey so far  read more


Fundraising

Thank you

Thank you to everyone who helped raise funds for SUDEP Action between April and June, 2016. Well done!  

Stuck for fundraising ideas? Check out our website for inspiration 

Thinking of holding a fundraising stand?
There are many fetes across the UK that would be happy to have a SUDEP Action stand at the event. Find out more here.

Blog
Read our monthly fundraiser's blogs



Useful Resources and Links

Epilepsy Self Monitor
EpSMon is now available for free download in the UK for Android and IOS devices here

Jane Hanna's Blog

Report a death to The Epilepsy Deaths Register

My Story
- is an important and powerful way for you to join our campaign read more
 
The third SUDEP Awareness Day is coming up on 23 October. More details on the event and how you can get involved coming soon


Find out more about the different ways you can get involved in helping us raise awareness
SUDEP Action & SUDEP Action Scotland are the working names of Epilepsy Bereaved. Registered charity number 1050459 (England & Wales), SC045208 (Scotland)
 
Our mailing address is:
12a Mill Street, Wantage Oxon OX12 9AQ

Web: www.sudep.org

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