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2016 FRAXSOCAL updates

Looking back on some awesome FRAXSOCAL events this year we realized that it's all because of YOU!

We hosted our 4th Annual 5K for Fragile X on Saturday, April 23, 2016 at Bonelli Park, CA in celebration of California Fragile X Awareness Day! We had over 120 in attendance for this Family Fun Day/ Fundraiser and raised a little over $3,000 in the name of Fragile X! Our participants ranged from our Fragile X community, new families with Fragile X, family, friends, Los Angeles County Sheriff Department, and avid 5K runners! It was an amazing day with amazing people and we were able to spread Fragile X Awareness. We are so excited to have a date for our 5th annual 5K which will be on April 22, 2017 at the same location, Bonelli Park! We hope you all can make it! 

4th Annual 5K for FX  Frank G. Bonelli Regional Park   April 23, 2016

It was our pleasure to host a one day conference, X-pert Advice: Educational & Daily Living Strategies for Fragile X on May 20, 2016 in Carson, CA.  Tracy Murnan Stackhouse, MA, OTR & Sarah (Mouse) Scharfenaker, MA, CCC-SLP (Co-Founders Developmental FX Denver, Colorado) were the X-pert presenters. We had an equal number of parents and professionals attend the event with 42 attendees total.  Long Beach Memorial and Miller's Children's Hospital/Stramski Center sent their entire staff  from the Fragile X Clinic and helped us with the planning of the event. Dr. Gary Feldman, the medical director of the FX Clinic, made the opening remarks and joined Tracy and Mouse for Q and A after the presentation.  We had several new families attend who were thrilled to get the opportunity to hear from two of the best experts in the field.  We had social workers, educators, behavioral therapists, nurses and one doctor among the professionals attending.  Attendees also had time at lunch to share ideas and stories of their own experiences.

X-pert Advice with Tracy Murnan Stackhouse, MA, OTR & Sarah (Mouse) Scharfenaker, MA, CCC-SLP  (Click here for Lecture notes FX101)

On October 1, 2016 we had a Family Fun Day at Cal State Fullerton's Titan Bowl & Billiards. It was such a great day where our FX family, new and old, gathered together for a day of fun. Families were able to share their stories with each other, get new ideas and support each other on this FX journey we are on. We look forward to many more of these events so stay tuned! 

Family Fun Day Bowling Event     October 1, 2016

Join FRAXSOCAL at one of the upcoming Community Resource Fairs!

*These announcements have been sent to you as a courtesy of FRAXSOCAL on behalf of CSUN and Autism Speaks. FRAXSOCAL takes no position and makes no claims.

Angel Stadium of Anaheim 
Sunday, December 04, 2016
FRAXSOCAL will have a booth so please come out and join us!
Resource Articles and ways you can support FRAXSOCAL

What you need to know about In Home Support Services (IHSS) and your taxes. Click here to read article

Preparing for the Emergency Drill at Home 

by: Christina Aguirre-Kolb is a Licensed Educational Psychologist 

Read article here

Click here to dowload our order form

Board of Directors!

We are always looking for dedicated people to enhance our community! If the joining the board is not an option for you at this time, we are always in need of volunteers for projects and events! Share your talents with FRAXSOCAL! 

Download our PDF and fill out an application today (attach application) and send it to us!

Shop at AmazonSmile & Amazon will make a donation (0.5% of the price of your eligible AmazonSmile purchases) to FRAXSOCAL! 

Don't forget during this holiday shopping season to select us as a charity by following these easy instructions:

1. Simply go to
2. Under "Select a charity" search for: Fragile X Association of Southern California.
3. Then click select this charity and start shopping.

Happy Shopping!
!Halloween Season
Author: Jayne Dixon Weber
  • Going to the pumpkin patch
  • Decorating your house – inside and out
  • Choosing and trying on costumes
  • Carving the pumpkin

Share a Story

Feeling creative? Or, got some great FX-related news? Share it with us!!! We’d love to have you write an article for our newsletter!!! Please email your stories and pictures to 

Mission Statement

Our organization was formed to promote public awareness of Fragile X Syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns and problems; and support scientific research on Fragile X Syndrome.

The Fragile X Association of Southern California is run entirely by volunteer parents of children with Fragile X Syndrome. We are a nonprofit 501 (c) (3) tax exempt corporation. Your tax deductible donations help support our mission and are gratefully accepted. 

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