Last week Chief Executive Julia Overton attended the Adelaide BioMed City Launch. Adelaide BioMed City is a health and life science cluster located in Adelaide. It brings together research, education, clinical care and population health through these partners: Royal Adelaide Hospital, South Australian Health and Medical Research Institute (1 and 2), University of Adelaide, University of South Australia and Flinders University. Adelaide BioMed City’s goal is to build impact, leverage investment and inform evidence-based healthcare through collaboration. As South Australia’s peak organisation for health consumers, we enjoyed being a part of this significant launch. You can find out more about the Adelaide BioMed City here.
Human Rights and Mental Health Workshop
Last Wednesday 21 November, the Human Rights and Mental Health Workshop was hosted by the Mental Health Coalition of South Australia (MHCSA), in partnership with Carers SA, the Lived Experience Leadership & Advocacy Network and HCA. This event followed on from the Mental Health and Human Rights Breakfast in August this year. Participants contributed ideas on innovative and empowering ways forward to ensure human rights are protected during service delivery. You can find out more about the Mental Health Coalition of SA here.
Funding cuts to SHINE SA
On Monday 26 November HCA’s Ellie Hodges, Board Member Paul Laris, and two members of our Consumer Advocates Network attended the SHINE SA funding cut advocacy meeting at Parliament House. The meeting was called in response to the announcement of significant funding cuts to SHINE SA. The cuts have resulted in an announcement of:
the closure of two health clinics at Davoren Park and Noarlunga Centre
the closure of the HIV counseling services in the Adelaide CBD as of February 2019, and
the de-funding of Centacare’s Cheltenham Place service, which provides outreach and respite support to people living with HIV.
You can view SHINE SA's letter of the announcementhere.
The meeting was called by Chris Picton MP, Shadow Minister for Health and Wellbeing, and was attended by concerned clinicians, groups and consumers to begin to campaign against these cuts and lobby for the funds to be re-instated. A key outcome of the meeting was the agreed formation of a campaign committee. If you have a lived experience story of how SHINE SA has helped you on your health journey you can email it to us at email@example.com.
An online petition has been created calling for the funding cuts to be reversed. You can sign an online petition and find out more here.
Thank you Lyn
We take this opportunity to formally acknowledge and thank Lyn Whiteway for volunteering her time to help in the HCA office. Lyn's help is invaluable to us. She recently completed a project for us, and in recognition of her efforts, HCA staff presented her with flowers as a gesture of our gratitude. Thank you Lyn!
HCA will close over the Christmas period between Friday 21 December 2018 and will open on Monday 7 January 2019.
The last edition of the 2018 eNews will be published on Wednesday 19 December 2018.
The first edition of our 2019 eNews will be published on Wednesday 23 January 2019.
There is change ahead for the HCA team in 2019, and we take this opportunity to thank our supporters and members for your continued support throughout 2018.
The Royal Australasian College of Physicians - Consumer Advisory Group
Closes: Sunday 6 January 2018
The Royal Australasian College of Physicians is recruiting a consumer with Aboriginal and/or Torres Strait Islander background and/or experience to join their Consumer Advisory Group. The College established the Group to provide strategic advice on the integration of patient-centred care in their professional standards and education approaches. The appointment is for a two-year term from 1 February 2019 to 1 February 2021. The group will meet quarterly, via two face-to-face meetings in Sydney and two teleconferences. Travel costs and sitting fees will be covered for this work. You can find out more here.
NHMRC Consumer Engagement Award
Closes: Friday 11 January 2018
Nominations are open for the National Health and Medical Research Centre (NHMRC) Consumer Engagement Award. Nominations are sought for individuals, groups of individuals or organisations who have been:
strong advocates for health and medical research and/or
inspirational role models for health consumers and/or
instrumental in improving or supporting community interactions with health and medical research.
The award recognises long-term contribution, individual commitment, and support of consumers and community views in health and medical research. You can find out more here.
COTA Study: Does your local community promote healthy ageing?
COTA SA is seeking adults aged 65 years and over to participate in a project on healthy ageing. The project aims to find out about how older South Australians participate in their community, and how these choices affect their health-related quality of life. To be eligible to participate in this research you must be mobile and live independently. Participation involves, questionnaires (demographic, loneliness, sleep, and health-related quality). Wearing a GPS device and activity tracker for seven days, whilst keeping an activity diary. To find out more please contact: Claire Gough on 8201 7803 or email Claire.firstname.lastname@example.org
Inclusive Schools Community Project Consultation
Thursday 29 November 2018 4.00pm – 6.00pm Unley
JFA Purple Orange is hosting a consultation for students living with a disability and their families on their views of school education in South Australia. This is an opportunity for consumers and carers with lived experience to have their say about school culture and belonging, and how this can be improved for students living with disabilities. This consultation is a part of the Inclusive School Communities Project. JFA Purple Orange is delivering a two-year project to build capacity of at least 12 schools across metropolitan and greater Adelaide to advance school inclusion practices. The project is funded by a National Disability Insurance Scheme Information Linkages and Capacity Building Jurisdictional Based Grant. You can find out more and register here.
Community Workshop - Establishing the new Adult Safeguarding Unit
Thursday 6 December 2018 10.30am – 1.30pm Adelaide Pavillion
The Office for the Ageing invites community members to attend a workshop on establishing the new Adult Safeguarding Unit. This Unit, expected to begin operations in mid-2019, will be a one-stop shop - responding to reports of abuse or neglect of vulnerable adults, and providing safeguarding support tailored to the needs and wishes of the person experiencing the abuse. This is an opportunity to provide feedback on the draft Charter of the Rights and Freedoms of Vulnerable Adults, and to share your views about how the new Unit can keep the rights of vulnerable adults at the centre of its operations. You can find out more and register here.
Connecting with Community Forum
Wednesday 12 December 2018 2.00pm – 4.30pm Adelaide
South Australian Health and Medical Research Institute (SAHMRI) is hosting a Connecting with Community forum for community members and researchers currently involved in community engagement activities across SAHMRI, Health Translation SA and Adelaide BioMed City. The Forum will be an opportunity to meet with other interested community members and researchers, and to share your experiences and ideas, which will be used in shaping future community engagement opportunities and activities. You can find out more and register to attend here.
Medical Devices and Implant Failure
In 2017, Health Issues Centre Victoria (HIC) initiated a public investigation into the unintended injuries caused to thousands of women through the use of trans-vaginal mesh implants as the preferred treatment for pelvic prolapse and urinary stress incontinence. This research has led to far reaching reforms with changes to the information provided to women considering corrective measures, the establishment of care pathways for injured women and changes to the risk rating applied to mesh by the regulator of medical devices, the Therapeutic Goods Administration. HIC is now conducting a public consultation to identify other patterns of malfunction in medical devices and implants. This is a national consultation and the aim is to ensure that faulty devices are removed from the market, and that consumers who have suffered injury are provided with adequate care and remedy.
You can find out more on the HIC investigation here.
Drug and Alcohol Services South Australia (DASSA) is undertaking its annual survey to evaluate the Community Partnership Program (CPP). Feedback received via the survey will help DASSA to identify opportunities for quality improvement and to enhance opportunities for consumers participating in the CPP. The outcomes of the consultation will enhance the way DASSA engages with the community and their members. The survey takes approximately 10 minutes to complete. You can find out more here.
Have your say on the Health Star Rating
Closes: Friday 7 December 2018
The Australian Department of Health invites interested parties to provide feedback on the Health Star Rating (HSR) Consultation Paper. The HSR system is a voluntary front-of-pack labeling scheme that rates the overall nutritional profile of packaged food, and assigns it a rating from 0.5 to 5 stars. With a focus on processed packaged foods, the objective of the HSR system is to provide convenient, relevant and readily understood nutrition information and/or guidance to assist consumers to make informed food purchases and healthier eating choices. The Department of Health is seeking views on 10 key issues relating to products on which the HSR appears, and the way the stars are calculated. You can find out more here.
SafeHealthApps: Monitoring problems with health apps
Macquarie University invites consumers who use mobile health apps to participate in a study about how they use them. The purpose of this study is to identify the types of safety problems that arise when consumers use mobile apps to manage their health and the consequences of those problems. Participants will be required to complete an online survey (approx 10 mins) about their use of health apps. You can find out more here.
What do you think about NHMRC?
The National Health and Medical Research Council (NHMRC) invites feedback on how they can better communicate with their audience through the various platforms now available. They have recently undergone a organisation-wide reform program, which has included a restructuring of their grant programs, peer review processes and the introducion of a new grant application platform. NHMRC is seeking information on how you receive, access and use information from them via a short online survey. You can take the survey here.
Closure of DASSA’s Woodville Sessional Clinic
Since December 2014, Drug and Alcohol Services South Australia (DASSA), SA Health, has operated a sessional clinic in Woodville one day a fortnight to provide prescription reviews and client access to medical, nursing and allied health staff. Due to the declining number of clients accessing this sessional service, DASSA will cease providing a clinic from this location on 18 December 2018. Clients requiring ongoing access to DASSA treatment can access DASSA central services at Stepney. Clients not requiring ongoing access to DASSA treatment will be supported to access a General Practitioner or relevant non-government organization.
Aboriginal Elders Living a Positive Life Toolkit
This Aged Rights Advocacy Service toolkit was developed in consultation with key stakeholders, to raise community awareness of how older Aboriginal Australians can take steps to safeguard their rights and live a positive life. It provides information for facilitators to help start conversations with older Aboriginal Australians about how they can get involved in activities to maintain their well-being and safety. You can find out more here.
Oral Health and Dental Care in Australia
The Australian Institute of Health and Welfare has released its updated report on Oral Health and Dental Care in Australia. The report presents key data, information, and trends in dental health over time, via a suite of interactive data visualisations, which describes the oral health status of Australians and their use of dental care services. It will be added to and updated progressively as data becomes available. Good oral health is fundamental to overall health and wellbeing. You can find out more here.