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HCA News and events

Welcome Brayden!
Bachelor of Media Student Placement 


Advance Care Directives Act 2013: 5 Year Review

The Bleeding Edge Film Screening

ACSQHC Focus Group
HCA Training 

Introduction to Consumer Advocacy Training 29 May 2019

Tailored Training Options

 
Consumer Advocate Vacancies 

SAAS - Adverse Events Governance Committee 

CAMHS Consumer Advisory Committee

CaFHS Consumer Advisory Committee 
Have your say 


Royal Commission into Aged Care Quality and Safety

Pelvic Mesh Consumer Stories Survey

Medical Board of Australia - Public Consultation on Complementary and Unconventional medicine and Emerging Treatments
Upcoming events

Adelaide PHN Consumer Interoperability Consultation

SA Primary Health Care Conference 2019

Ageing in a Foreign Land
Other news 

Meditation and Adolescents diagnosed with Polycystic Ovary Syndrome (PCOS) study

CHF 2019 Federal Election: How the Parties Stack Up
 
Welcome Brayden: Media Placement Student 
Hi there! My name is Brayden Sullivan and I am in my third year of my Bachelor of Media degree at the University of Adelaide. I am currently undertaking an internship at Health Consumers Alliance of South Australia where I am helping them produce some videos for their social media and website. I have always enjoyed creating video content ever since I was young, so I am very happy to be creating videos for an organisation with such an incredible mission.
Advance Care Directive Act 2013: 5 Year Review
Friday 17 May 2019
2pm to 4pm
47 King William Rd, Unley 

The Minister for Health has initiated a review of the Advanced Care Directive Act 2013 (SA) as part of a required five (5) years review. This independent review is being undertaken by University of South Australia who is consulting with key stakeholders and the public to identify recommendations and findings about the effectiveness and operation of the Act as well as key areas of concern in the area of advance care planning to inform the Minister.

To support this review, Health Consumers Alliance of South Australia (HCASA) is inviting consumers, their family members, carers or friends who have lived experience of implementing an Advanced Care Directive, either for themselves or for another person to attend this workshop or complete an online survey. 
Registration and Survey
The Bleeding Edge Film Screening 
Wednesday 1 May 2019 was International Mesh Awareness Day. With the support of SA Health, HCASA hosted a public screening of the award-winning documentary 'The Bleeding Edge'. The film was followed by presentations from Walkley Award winning journalist Joanne McCarthy and Registered Nurse Jessica Feeney, from the Pelvic Mesh Clinic at the RAH. The speakers then joined the other panel members Naomi Burgess from SA Health, Kim Blieschke a mesh effected consumer and Georgina Fry, a consumer involved with the clinical trial for Essure contraceptive device, for a question and answer session.
This session brought up some great questions including the burning question, where to from here? Consumers and members of the audience wanted to know how support can be opened up to all people effected by mesh, not just pelvic mesh. HCASA were grateful to host this event as a springboard into more conversations and continuing action to support all consumers effected by mesh and other devices in South Australia.  
The Bleeding Edge Website
ACSQHC National Safety and Quality Standards for Primary Care services consumer focus group 
HCASA hosted a consumer focus group for the Australian Commission on Safety and Quality in Health Care (the Commission) to provide feedback on developing standards for primary care services. This is the start of a process the Commission will be undertaking nationally between May and July 2019. The session was facilitated by Margaret Banks and Hanna Pak. The two ran a modern and interactive focus group that utilised technology and real-time feedback. If you were unable to attend on the day but would like to provide feedback, the Commission has created a survey that will be open during their consultation period until 31 July 2019. 
Consumer Survey
Introduction to Consumer Advocacy Training
Wednesday 29 May 2019
This entry-level consumer advocacy training is for people with experiences of the health system that would like to help make the health system and services more consumer-centred through participating in committees, consultations, projects and other activities. Consumers who complete this training will become members of the Consumer Advocates Network, which provides an opportunity for networking, ongoing learning and first access to consumer roles that become available. 
Flexible payment options are available.
Email 
training@hcasa.asn.au for more information. 
Find out more and register
HCA's Tailored Training Options: Health, Disability & Ageing
Did you know HCA can come and deliver consumer advocacy training to your organisation or community group? We can work with you to develop tailored training to meet your group's needs and requirements around consumer engagement. We offer training to consumers, health practitioners and community service organisations who work with consumers.
We recently delivered a tailored consumer advocacy training to a large Aged Care provider setting up a consumer advisory group. The attendees provided feedback that the session was well run, informative and that they felt privileged to be a participant.
Email training@hcasa.asn.au for more information. 
SA Ambulance Service - Adverse Events Governance Committee
Closes: Tuesday 30 May 2019
SA Ambulance Service is seeking two consumers to join their newly established Adverse Events Governance Committee. This committee has been established to provide governance, oversight and advice on the implementation of the fourteen recommendations contained in the report Final Report on Systems Factors relating to SAAS safety incidents in 2019.
Expression of Interest
WCHN - CAMHS Consumer Advisory Committee
Closes: Sunday 30 June 2019
The Child Adolescent Mental Health Services (CAMHS) Division wants to continue to tailor its services to the highest quality standard for all women, children, young people and families requiring mental health support. They are looking for recent consumers and carers to join the divisional advisory body known as ELECT. They want to ensure that they partner with consumers, carers and families during mental health episodes and when planning or designing services. They are seeking consumers and caregivers over the age of 16 years to nominate for an advisory board position. There are 5 positions starting in August 2019.

To apply or find out more email Allan Ball at
Allan.Ball@sa.gov.au  
WCHN - CaFHS Consumer Advisory Committee
Closes: Sunday 30 June 2019
The Child and Family Health Service (CaFHS) Consumer Advisory Committee aims to provide direct feedback to the CaFHS division from the patients, clients and consumers who use their health services.  The committee is responsible for monitoring performance, providing advice on new models of care, service planning and health information and leading quality improvement activities. They want to ensure that they partner with consumers, carers and families during mental health episodes and when planning or designing services. They are seeking for consumers and caregivers over the age of 16 years to nominate for one of 4 advisory board positions starting in August 2019. 
To apply or find out more email Allan Ball at
Allan.Ball@sa.gov.au
Find out more and submit here
Royal Commission into Aged Care Quality and Safety
Closes: Sunday 30 June 2019
The Royal Commission are still taking public submissions until the end of June 2019. Submissions can be made for yourself or on behalf of someone else. We encourage consumers with any interest in Aged Care or the rights of the Ageing to complete a submission to ensure the consumer voice is central to this enquiry. 
Find out more here
Pelvic Mesh Consumer Stories 
Closes: Friday 17 May 2019
SA Health are seeking consumer stories about their pelvic mesh experience and consumer feedback on the development of the multi-disciplinary pelvic mesh clinic and the process of its development. SA Health has designed this survey and HCASA is supporting its distribution. Submissions are anonymous and this survey will close 5pm Friday 17 May 2019.
Consumer Survey
Medical Board of Australia - Public Consultation on Complementary and Unconventional Medicine and Emerging Treatments 
Closes: Sunday 30 June 2019
The Medical Board of Australia has released a public consultation paper to seek feedback on options for clearer regulation of medical practitioners who provide complementary and unconventional medicine and emerging treatments. Concerns have been raised by stakeholders about this area of practice suggesting that additional guidance for medical practitioners is needed to support safe practice and ensure safeguards for patients.
Consumers are invited to provide feedback about personal experience with complementary, unconventional and/or emerging treatments and how these practices should be governed and managed with consumer safety in mind. 
More Information
Adelaide PHN Consumer Interoperability Consultation
Tuesday 4 June 2019 3pm to 5pm
The Precinct Conference Centre
2 Ann Nelson Drive, Thebarton

Adelaide PHN is hosting two workshops to hear perspectives from consumers and clinical providers on the future of digital health in Australia, and how it can best support delivery of modern person-centred health services and empower personal wellbeing.
Find out more and register here
SA Primary Health Care Conference 2019
Friday 14 & Saturday 15 June 2019
Adelaide Convention Centre

The 2nd SA Primary Health Care Conference, hosted by Adelaide PHN and Country SA PHN, will be held at the Adelaide Convention Centre on 14 June & 15 June. 
The conference will explore the ongoing challenge of improving primary health care focusing on the themes of Integration, Innovation, Collaboration and Mental Health. 
Registration is free. For more information visit the website or contact
enquiry@adelaidephn.com.au 
Register here
5th International Conference on Ageing in a Foreign Land
Wednesday 19 and Thursday 20 June 2019
Flinders at Tonsley, 1284 South Road Tonsley

The AIFL conference brings together the expertise and innovation of multicultural communities with government, researchers, academics, policy makers and services. It aims to build sector capacity for ageing well across a range of settings through informing knowledge, practices and collaborative partnerships that respond to the voices of older people and priorities for multicultural communities.
More Information
Adolescent PCOS Meditation Study 
Adolescent females diagnosed with polycystic ovary syndrome (PCOS) needed for a research study looking at whether meditation improves quality of life in adolescents with PCOS.  If you are a female aged 12-20 years and diagnosed with PCOS, you can help us with this study in Adelaide evaluating a simple strategy to improve quality of life in adolescents with PCOS. This study has been approved by the Women’s and Children’s Health Network Human Research Ethics Committee (HREC/18/WCHN/168), Adelaide, South Australia.

If you are interested in finding out more information about this research, please contact Dr Alexia Peña (paediatric endocrinologist) on 8161 8134 or via email
alexia.pena@adelaide.edu.au
CHF Making Health Better: Priorities for the 2019 Federal Election Guide

The Consumers Health Forum (CHF) has released its scorecard on how the political parties stack up in response to CHF's  election priorities.  You can read today's media release here.
 
CHF's election scorecard, Making Health Better: Priorities for the 2019 Federal Election, How the Parties Stack Up can be accessed
here. Please note that this appraisal is confined to how the parties’ rate against CHF's election priorities based on two sources: statements made by the major parties during the election campaign and the parties’ responses to our letter. 

CHF has developed its priorities for Election 2019 through extensive consultation across its membership, policy roundtables hosted throughout 2016-2018, and its Consumer Sentiment Survey to gauge how people viewed the health system and where changes are needed. 
CHF Score Card


Croakey - Independent, in-depth social journalism for health 

Choosing Wisely - 5 Questions to ask your doctor 

 


Link - Australia's National Disability Magazine April Edition

SA Community News - Connecting Up
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