Community Engagement for Disability and Aging Research (CEDAR)
Spring 2020
CEDAR Midwest is a Disability and Rehabilitation Research project funded by the National Institute on Disability, Independent Living and Rehabilitation Research. This research project is exploring the participation needs of people aging with a physical disability in the community and how community organizations can best meet those needs.
COVID-Related Updates to Current Projects
With the ever-changing landscape we are facing during the pandemic, community organizations are working to provide vital information and assistance to their members. Our Community-Based Research Network has been collaborating and working to put together COVID-related resources for member organizations to provide to their clients.

As we all try to cope with the upheavals, lifestyle changes and anxiety surrounding the outbreak, it is particularly important to take into consideration its effects on vulnerable and overlooked populations. We have added a supplement of questions to this year's longitudinal cohort survey to learn more about how people aging with disabilities have been affected by the illness, the economic factors surrounding it, social distancing and sheltering-in-place mandates, and compounding emotional factors. Some of the questions on participants' needs and participation during the COVID crisis that we have incorporated into the survey address topics such as COVID-19 diagnosis, social isolation, anxiety, and how participants are managing to get their basic needs met while social distancing.
COVID-19 and Older Adults Webinar
Join our Community-Based Research Network on April 22 at 12 p.m. CDT for a webinar on the COVID-19 outbreak and its impact on aging and older adults. Dr. Nancy Morrow-Howell, Director of the Harvey A. Friedman Center for Aging at Washington University's Institute for Public Health, will share information and resources on the disease itself, financial issues/unemployment, and social and emotional factors related to social distancing. Please email us at for a link to the webinar.
Webinar Series
Many people are finding themselves with extra time on their hands due to sheltering-in-place guidelines. If you're looking for an educational and informative way to pass the time, check out our webinars on various topics relevant to people aging with disabilities.
Our Team
CEDAR Midwest includes well-established scientists in rehabilitation/participation science and aging research, and community organizations that serve both older adults and people with disabilities. Our team is experienced in community-engaged research approaches. The institutional partners, Washington University, Paraquad and the Simmons School of Social Work, are leaders in participation and aging with disability. Scientific and community advisory boards enhance the team and ensure the scientific rigor and community focus of our projects. To learn more about our team, please visit
Team Member Spotlight:
Our new officemates

The CEDAR Midwest team has been working from our respective homes, so we thought we would share pictures of the adorable family members keeping us company!

Sullivan and Oliver celebrating their 2nd birthday
Charlie and Cricket
Artemis, Athena and Zephyr
What We've Been Up To...
ADA Webinar

Kimberley Lackey, disability rights advocate, ADA legal expert, and Senior Director of Public Policy and Independent Living at Paraquad Independent Living Center, presented a webinar on the ADA to our Community-Based Research Network.

You can view the webinar in its entirety here.

What's Coming

Webinar: Social Isolation and Loneliness
On June 9th, we will be hosting a webinar on social isolation and loneliness. Dr. Carla Perissinotto, Associate Professor of Medicine specializing in Geriatrics at the University of California, San Francisco, will join us to discuss a topic of increasing concern as one ages and social networks may begin to diminish. Currently, the COVID-19 outbreak and public health protocols encouraging people to shelter in place add a compounding layer to these issues. We look forward to learning more from Dr. Perissinotto on this critical topic.
For technical assistance with any part of this project including information, resources, and data, please call 314-289-4270 or email us at
Find out more at
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For technical assistance or more information, please call 314-289-4270 or email us at

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