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I.H.S. Update 30th May 2016
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Don't Delay - Book Your Place Today
Parents Conference 2016 is just around the corner. With only 5 days left to register to attend, time is of the essence!!! Places are limited for the Crèche, Cubs, Kidlink & Youth groups. Click here to view the adults programme  or click here to book your place now. This year is shaping up to be a great one, you don't want to miss it. If you have any questions about the conference or your booking call the office on 01 6579900. 


I.H.S. Hoodies
The wonderfully fashionable I.H.S. hoodies will be on sale at the Parents Conference. We will have a limited number of each size with us so if you are interested in purchasing a hoodie please call the office on 01 6579900 with the size you require. These hoodies are ideal for the typical Irish summer - wet & cold!!! They come in a variety of children's and adults sizes and cost €20 for a children's size and €25 for an adult size.
Planned Giving
vCJD case reported in patient with different genotype
The first case of variant Creutzfeldt-Jakob disease (vCJD) in a patient that is genetically different from all previous confirmed cases, has been reported in the U.K. This suggests, as researchers have predicted, that the incubation of vCJD may take longer in certain groups of people. This 36 year old male patient was heterozygous at codon 129 (M/V) of the PRNP (prion protein), while all previous confirmed cases of vCJD have been homozygous for methionine (m/M) at codon 129.

vCJD is a rare neurological illness and is part of a group of diseases called prion diseases which affect humans and animals. Prion diseases are progressive, currently untreatable and ultimately fatal. Most vCJD cases are linked to consumption of cattle infected with bovine spongiform encephalopathy (BSE). Cases of vCJD have been in decline since their peak around the year 2000. However, there has been concern that people who were exposed to the infectious agent that causes vCJD may develop symptoms at difference rates due to their genotype at codon 129. A possible case of vCJD in another M/V patient was reported in 2009 but was not confirmed.
To read more of this article click here
Kindness is like a boomerang - it always returns!!!
The I.H.S. are always looking for new volunteers. Our main use of volunteers is assisting the staff at events - would you be interested in helping out with one of our children's groups? Are you a budding photographer - maybe you could take photos for our publications and website. Every little helps, for more information or to discuss the possibility of volunteering contact Fiona on 01 657 9900 or email fiona@haemophilia.ie
If you are interested click here and fill in the application form.
Copyright © 2016 Irish Haemophilia Society, All rights reserved.


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