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I.H.S. Update 29th September 2016
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Barretstown Haemophilia Camp 2016

Barretstown Haemophilia Camp is a specially designed camp that provides programmes of activities, adventure and fun for children aged 7 - 17 years with bleeding disorders and their siblings, which is also backed by a full medical team. 

This year, the camp will take place between the 3rd - 6th November. Canoeing, archery, pottery, arts and crafts, horse-riding, rock climbing, music - the list goes on with activities at Barretstown! Places are filling up fast so in order to grab a spot, contact Fiona on 01 657 9900, email at fiona@haemophilia or click on the Barretstown website.

Dates for Barretstown Camps in 2017 will be released at the beginning of December. These include siblings camps, teenage camps, summer camps and family camps. For more information click here.
Member's Conference 2016

This year's Members Conference is fast approaching and will be held in the Radisson Blu Hotel, Rosses Point, Co. Sligo. This year, the programme will focus largely on disclosure, communication with healthcare workers and debates and discussions on new treatments.

This year, the adults will have just as much fun as the kids - we have a cookery demonstration (and tasters) lined up with celebrity chef Joe Shannon, a mindfulness workshop and a round of games to top off the weekend. 

If you have any query in relation to your booking, don't hesitate to call us on 01 657 9900 or email fiona@haemophilia.ie.
Final call for the Education Grants!

The I.H.S offer education grants each year to people with haemophilia or related bleeding disorders, who go on to do a post second level educational course.

To help students along their way in university, we are offering the following amounts to students:

Maureen & Jack Downey Educational Grant

  • First prize        €4,000
  • Second prize    €2,000
    (This is called the Father Paddy McGrath Educational Grant)
  • Third prize       €1,500

Margaret King Educational Grant

  • First prize        €2,000
  • Second prize    €1,000
  • Third prize       €500
 
IN THE MEDIA....
The World Federation of Haemophilia’s World Congress is the most significant global event covering health care and inherited bleeding disorders. This gathering occurs every two years in various locations around the world bringing together leading scientific experts and health care practitioners, product manufacturers, business leaders and people with bleeding disorders. 
The WFH Congress 2016 took place this summer in Orlando, Florida. Although there was an estimated 6,000 delegates who attended, the knowledge does not stop with them. Each session was documented, giving those who did not have the opportunity to attend to learn and benefit from areas in Dental, Medicinal, Musculoskeletal, Psychosocial and Nursing. 

WFHCongressDaily.org is a website that gives a daily breakdown of sessions from the week. Start here by seeing our own Ger O'Reilly tell his story and what advancements in treatment meant for him.
Travel, health, fitness, entertainment, relationships - Frankly.net. 

Speaking Frankly is a daring, distinctive website that aspires to serve as a candid, trusted resource on real issues of concern to teenagers and young adults with haemophilia worldwide. The website is led by a team of writers and editors who are members and alumni of the Step Up Reach Out and AFFIRM international leadership programmes.
The site casts light on often taboo subjects such as sexuality, drugs and depression, and offers lively coverage of lifestyle topics including travel, entertainment, health and fitness.
Click here to visit the site.
WFH.org
Frankly.net
Barretstown
Fundraising

What can I do?
Do you have any bright ideas for fundraising? Would you like to take part in a fundraising event but don't know where to start? At the I.H.S, there are many ways you can get involved with fundraising with a variety of events happening throughout the year. Some great examples suggested and carried out by members are as follows: 
  • Dry October (No alcohol for a month!)
  • Movember (No SHAVING for a month!)
  • Christmas gift wrapping station
  • Christmas Bake Sale
  • Christmas Carol Singing
  • Mountain hike/walk
  • Car Boot sale
  • Car Wash
  • Swear jar 
  • Bagging groceries
  • Coffee morning
  • Skydive!
If any of these strike a chord with you, let us know!
 
Where do funds go?
Remember, any amount however small can make a real improvement to the society. Contributions are used for a variety of services such as our Hyde Square apartment facility for members, to provide information sessions and conferences for members throughout the year, to carry out regional and hospital visits around the country and to provide ongoing publications i.e seasonal magazine and educational pamphlets.
Our overseas development fund also greatly benefits from donations, giving improved access to treatment for developing countries. 

How can I get involved?
We will have sign up sheets for each fundraising event at our Members Conference in October but for those who aren't attending, express your interest by emailing nina@haemophilia.ie or calling the office on 01 657 9900. Make some fun and make a difference! 
Hyde Square Apartment

The  I.H.S would like to remind our members that our apartment facility at Hyde Square is available to people with haemophilia or related bleeding disorders, their spouses, children or immediate family members when attending St. James’s Hospital or Our Lady’s Children’s Hospital, Crumlin for treatment or hospital appointments. The facility is particularly useful for those travelling outside of Dublin and there is a nominal fee of €10.00 per booking per night to cover the cost of cleaning and routine maintenance. 

If you would like to book the apartment please contact Paula or Debbie on 01 657 9900 or any member of staff and we will deal with your query or booking.



 
Connect with Us
LINKS OF INTEREST
Irish Haemophilia Society
World Federation of Hemophilia
European Haemophilia Consortium
Consultative Council on Hepatitis C
National Haemophilia Council
Barretstown Camp
Get Ireland Active
Children in Hospital Ireland
Health Service Executive
Irish Health.com
Citizens Information Bureau 
Copyright © 2016 Irish Haemophilia Society, All rights reserved. 
As a member of the Irish Haemophilia Society you have agreed to be on a mailing list from which you will receive monthly eZines from the IHS. 

Our mailing address is: 
Irish Haemophilia Society
Cathedral Court
New St,
Dublin 8, Dublin
Ireland






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Irish Haemophilia Society · Cathedral Court · New St, · Dublin 8, Dublin · Ireland

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