I.H.S. 31st July 2015
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Educational Grants 2015

Have you been accepted on a post second level educational course?
Are you going to college?
Do you have haemophilia or a related bleeding disorder?
Are you a family member of a person with haemophilia or related bleeding disorder? 

Put pen to paper, it’s time to apply!

Applications are now being accepted for the 2015 Educational Grants. You can apply online on our website, or you can also download the application forms from our website, 
complete them and post them to the office.  Click here to download forms

What types of Educational Grants are available?
There are two categories of grants available:
•    Educational Grants for people with haemophilia or related bleeding                     disorders.
•    Educational Grants for immediate family members.

How much do you receive with an Educational Grant?
The grants are broken down as follows:

Maureen & Jack Downey Educational Grant 
•    First Prize         €4,000
•    Second Prize    €2,000 (This is called the Father Paddy McGrath                        Educational Grant)
•   Third Prize         €1,500

Margaret King Educational Grant
•    First Prize         €2,000
•    Second Prize    €1,000

•    Third Prize        €500

What are the criteria for applying?
The criteria for the Maureen & Jack Downey Educational Grant.
This grant is made available to a person with haemophilia or related bleeding disorder, who has accepted on a post second level educational course. The person applying must be registered at the National Centre for Hereditary Coagulation Disorders at St. James’s Hospital in Dublin. 

The criteria for the Margaret King Educational Grant
This grant is made available to an immediate family member of a person with haemophilia or related bleeding disorder be it a spouse, son, daughter, sister, brother, mother or father. The person applying must be accepted on a post second level educational course. Furthermore, the person with the bleeding disorder must be registered at the National Centre for Hereditary Coagulation Disorders at St. James’s Hospital in Dublin.  

What is the closing date for applications?

The closing date is Friday 25th September 2015.

How are the applications scored and who scores them?
Once the closing date arrives and all the applications are received. A 
sub-group of three people from the executive board (which cannot include anyone with a family member applying for any of the grants) meet to consider and score the applications, and make recommendations to the rest of the executive board regarding recipients. The successful applicants are notified at the end of October by letter. 

Applications are scored on the following:
•    The quality of the application.
•    Details of information given on the application form.
•    Involvement in the Irish Haemophilia Society to date.
•    Financial need.
•    How many in the family are attending college?
•    If it is the applicant's a first-time applying.

Can I apply every year?

Yes, you can apply every year, even if you have already been successful, but remember even if you are eligible for both grants you can only apply for one of them. 

1. Be thorough with your application

2. Ask for help

3. Do a spell check

4. Apply on time

5. Answer all the questions

Take some time to complete your application, as the more complete and detailed your application is, the higher your chance is of being successful. And please do fill out the application yourself! Good luck to everyone who applies. 
Debbie Greene
Cork Women's Mini Marathon
The Cork Evening Echo Women’s Mini Marathon will take place on Sunday 27th September 2015 at 1pm.  The race is a 4 mile/6.5km road race and is suitable for everyone, you can choose to run, jog or walk depending on your fitness level.  To register for the race or for more information log onto, registration costs €12.  Remember to register as no race number means no entry to the race and no medal.  

If you decide to take part, we would really appreciate if you would consider fundraising in aid of the I.H.S.  We would be happy to provide sponsorship cards and I.H.S. t-shirts for the race, if you are interested just contact me on or call 01-6579900.
Nina Storey
Upcoming Events for 2015
HCV/HIV Conference
26th - 27th September 2015,
Kingsley Hotel, Cork.

Members Conference
16th - 18th October 2015,
Heritage Hotel, Portlaoise.

PEP (Parents Empowering Parents) Programme
20th - 22nd November 2015,
Clarion Hotel, Liffey Valley.

If you require any information on the above events call 01 6579900.

Upcoming Events for 2016
Annual General Meeting
4th -6th March 2016,
Hotel Kilkenny, Kilkenny.

Carrier Conference
7th - 8th May 2016,
Castleknock Hotel, Dublin. 

Parents Conference
24th - 26th June 2016,
Sheraton Hotel, Athlone.

HCV/HIV Conference
24th - 25th September 2016,
Dunboyne Castle, Co. Meath.

October Conference
14th - 16th October 2016,
Radisson Blu, Sligo.

PEP (Parents Empowering Parents) Programme
12th - 13th November 2016,
Clarion Hotel, Liffey Valley.

More information on these events will feature on our social media, website and publications nearer each event.
I.H.S. New Website
The new look I.H.S. website will hopefully be launched in the next couple of weeks. We are working really hard on it to get it ready a.s.a.p. and we are really excited about it. Hopefully, you will love it too!!!
Positive News
The next edition of the I.H.S. Positive News will be out in the coming weeks. Declan has been working tirelessly to get it finished. 
Keep an eye on our website and social media for the link.
Click here to view past editions of Positive News

I.H.S. Summer Magazine 2015

Check out the Summer Magazine 2015 from the I.H.S. A report from the Ageing and Parents Conference, a Kidlink and Cubs page, an article by Stephen Curtin on Neverending Education and a Twinning Update are just some of the interesting and informative features included in this seasons Magazine.

To read past editions of I.H.S. Magazines click here
October Members Conference
Friday 16th - Sunday 18th October 2015
Heritage Hotel, Portlaoise
Preliminary Programme 
Friday 16th October 2015

18.00 – 19.30              Registration
Saturday 17th October 2015

09.30 – 10.00              Registration
10.00 – 11.30              Factor Concentrates - Clinical & Patient Perspectives
11.30 – 12.00              Coffee break
12.00 – 13.00              New NCHCD
13.00 – 14.00              Lunch
14.00 – 15.30              Impact of haemophilia on family dynamics
15.30 – 16.00              Coffee break
16.00 – 17.00              Resilience and maintaining a positive attitude
19.15                             Dinner
Sunday 18th October 2015 

10.00 – 11.15              I.H.S. Carnival - Full Group Activity
11.15 – 11.45              Coffee break
11.45 – 12.45             Exercise for all
12.45                          Collect children from programmes
13.00                          Lunch
Youth Leadership Day, I.H.S.Offices 31st July 2015
The current prophylactic regime for children with haemophilia should prevent the vast majority of joint and muscle damage and allow the child with haemophilia to lead a normal life. However, in the case of severe haemophilia there can be spontaneous bleeds which can cause damage to joints and muscles resulting in pain, arthropathy and at times a significantly reduced perceived quality of life. 
While children in Ireland are extremely fortunate to have successful treatment there 
is a plethora of psychological issues that are often inevitable with the diagnosis of a chronic disorder. Children with haemophilia have to deal with regular injections for the rest of their lives, pain from breakthrough bleeds and from time to time, missing out on activities at home or in school due to bleeds or safety. The I.H.S continues to stress that children with bleeding disorders should not be defined by their condition and the limitations it may at times bring. We offer children the opportunity to focus on what they can do in a positive way. 

While children with bleeding disorders can be considered normal to their peers, they are faced with additional challenges. The opportunity to bring these children together, hopefully, will help them to adopt a positive outlook that will stay with them well into their adult years and help them to live confidently and positively with their condition. This peer support is hugely beneficial; as the condition is rare, children may often feel isolated and angry at their situation. I often hear at our events, the difference meeting other children with the same condition has made to a child’s self – esteem, self – evaluation and outlook. 
We have brought together a group of teenage boys from around the country, the programme will be delivered on 6 individual training days; some of these have and will include weekdays on their mid-term break or summer holidays the rest will be on Saturdays. The topics to be covered are psychosocial issues, transition, medical education, information regarding school / college, future careers, sport and travel, an I.H.S day which involves meeting the staff, preparing items and topics for a board meeting and finally a wrap-up day which will bring together the group and review what they have learned together and 
most importantly what have they learned about themselves and their ability to be in control of their health care, but most importantly to understand that they are equipped to deal with their health in a positive manner. 
It is my hope that these training days and friendships that will inevitably develop, will create and in some cases change their perception of their medical condition into a more manageable, healthy and positive outlook for the teenagers at such a vulnerable age. It is also my hope that the boys will develop a stronger sense of commitment to the Society and see it as an important resource for them in the future.
Fiona Brennan 
Parents Empowering Parents Programme (PEP)
This will be our third workshop training 12 parents of children with bleeding disorders by a full team of Irish trainers including parents, social worker and a nurse.
•    It is designed to promote effective parenting skills
•    It is tailored to the needs of parents and provides practical information in a supportive environment
•    It builds upon parenting abilities to help to make every day easier for both parents and children
•    It allows parents to meet other parents and learn from each other.
This parenting programme was designed in the United States in 1996 by Danna Merritt, a Social Worker, to help parents become more aware of their thoughts and feelings which might influence how they parent their children. This awareness gives parents choices about keeping or changing some practices. The programme offers parents the time to reflect on how they were parented and their own parenting skills.
The purpose of PEP is to develop a “can-do” approach to living with bleeding disorders; to provide an understanding of how to modify a child’s behaviour and improve a child’s self-esteem; to give parents an opportunity to deal with their feelings about having a child with a bleeding disorder; to form parents support networks; to give parents tools for improving family communication and relationships; and to facilitate learning through discussion and practice exercises.
The programme is made up of 10 sessions starting with the Basics of Bleeding Disorders, Child Development, Compassionate Discipline, Behaviour Management, Understanding your World View, How Thoughts and Feelings affect Parenting, Building Self-Esteem, Understanding Communication, Communication Skills and Conflict Management and finally Parenting Styles.
To register your interest please contact Fiona on 01 657 9900 or you can email Fiona at Parents please note this is an adult only 
weekend. The dates for the conference are Friday 20th – Sunday 22nd of November in the Clarion Hotel, Liffey Valley, Dublin.
Copyright © 2015 Irish Haemophilia Society, All rights reserved.

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