Finding connection in unexpected places
Chordoma patient Jeff Schilling and friends hoped they could make a dent in our quest for better treatments and improved patient support. They were right.
Couple's email sparks 45,000 reasons for hope
Despite the pandemic and a chordoma recurrence, Mick and Noreen Potempa doubled down on their commitment to advancing research. Their remarkably simple effort raised tens of thousands of dollars to power progress for this disease.
Give back as a Peer Guide
Calling all good listeners: Become a Peer Guide to provide hope and comfort to those affected by chordoma. We provide easy virtual training; you provide patients and family the opportunity to connect with someone who understands what they’re going through.
Volunteer on our Finance Committee
We have an opening for a Finance Committee volunteer. If you have accounting or financial management experience, we invite you to help us ensure the continued financial health of the Foundation. Contact email@example.com to learn more.