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NEWSLETTER #10 - November 2016
International Empty Nose Syndrome Association


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NEWSLETTER #10 - ENSIA  

November 2016


ENSIA is thrilled to announce a neuro-mucosal treatment, which is now available for ENS sufferers!  This treatment will take place in Leipzig, Germany and the treatment methods are based upon scientific research and developments by a world-renowned stem cell and regenerative medicine researcher. 

The treatment methods are based upon the ABC principle: 1) activation of endogenous stem cells, 2) boosting (“internal proliferation”), and 3) commitment – signaling cells to implement a specific job for regeneration.  A variety of individualized treatment methods will be used ranging from topical applications – such as surface applications, pulsating micro-laser, and injections – to systemic treatments to surgery.  The method utilized will be tailored to the specific problem.  Various conditions targeted include:  empty nose syndrome (ENS), rhinitis, atrophic rhinitis (AR), sinusitis, post-nasal drip, nasal dryness, mucosal and cilia atrophy, mucosal apoptosis, nerve damage, scar tissue, neuropathy, anosmia and hyposmia (total or partial loss of smell), surgical wound damage, and others.



As of November 1st, 2016, 49 patients have been treated – with promising results so far.  This is an experimental treatment which has been approved by the “German FDA” and may require several applications.  It is important to keep in mind, however, that this treatment addresses the functional rather than the structural component of ENS.  The cost of this treatment is considered affordable compared to the cost of existing therapies, and it is likely dependent upon the specific treatment(s) required.  Professor Strauss is the doctor performing these treatments.  To schedule an appointment, please contact Mrs. Dana Hietzschold at the Acqua Clinic (www.acqua-klinik.de) at either +49 (341) 33-73-31-61 or by email at info@acqua-klinik.de.

Additionally, ENSIA has been hard at work developing educational materials that would make excellent handouts to provide your doctor.  These include a succinct, but comprehensive paper entitled, “Empty Nose Syndrome:  A Guide to Diagnosis and Management for Medical Professionals” and a research paper exploring the pathophysiology of ENS, entitled “ENS Pathophysiology”.  These papers are considered in “draft” form at present; however, the proposed SNOT-55, which is included in the guide, is already being used by some ENT doctors and clinics. The Guide provides extensive information about empty nose syndrome including, but not limited to: a discussion of the background of ENS, symptoms, diagnostic methods, management options, and a list of references. The research paper has been reviewed by healthcare professionals and includes a literature-based discussion on the functional aspects of ENS, including a discussion of cool thermoreceptors, mucosal damage and atrophy, and poor regeneration of nerves, as well as the structural aspects of ENS, including nasal resistance, aerodynamic load, airflow patterns and velocity.  One patient who shared these materials with her doctor reported, “You have no idea what difference your recent and professional handouts have made regarding my doctor’s opinion and understanding about ENS.”  You can download these materials directly from http://ensassociation.org by first logging in, and then going to the Resources link and scrolling down to Documents.
 



Health Tip of the Month
To be alive is to have stress.  The late Hans Selye, an Austrian-Canadian endocrinologist, proposed that we respond to stress – good stress (eustress), bad stress (distress), too little stress (hypostress), or too much stress (hyperstress) – either by adapting via the “general adaptation syndrome” or by developing a pathological state from ongoing, unrelieved stress.  I believe ENS patients tend to have ongoing, unrelieved stress because of the chronic physical symptoms. Yet we have tools which can reduce stress, and I believe the way we respond to stress is critical.  Common stressors for many people include money and work, in addition to dealing with the chronic debilitating illness of ENS.  On top of that, with the hustle and bustle of the holidays during this time of the year, I think it’s more important than ever to consider how we can reduce the stress in our lives. 

Here are 20 ways to reduce stress:

  1. Get organized for a short-term goal.  The better organized and prepared you are, the less stressful it will be.  This can also apply to a financial goal.
  2. Exercise.  Even light exercise, such as going for a walk, should be quite beneficial for ENS sufferers.   Swimming in a pool is another example.
  3. Laugh.  Enjoy reading the comics or watching your favorite movie.
  4. Enjoy a relaxing moment in a jacuzzi or sauna.
  5. Read a novel or your favorite book.
  6. Take a cat nap.  I find that resting for 20 minutes in the middle of a busy day can be quite rejuvenating. 
  7. Enjoy a massage, craniosacral therapy, a pedicure, manicure, or facial.  When alone, I also find the Theracane (on Amazon: http://a.co/f9h2srL) to be quite useful in this regard.
  8. Participate in yoga.
  9. Pray or meditate.  Actively engaging in mindfulness can also help.   
  10. Relax to your favorite music.  Frankly, I find classical music to be quite relaxing.
  11. Light scented candles.
  12. Chew gum, preferably sugar-free without aspartame, if available.
  13. Drink hot tea.
  14. Allot some healthy snacks (instead of those “comfort,” junk foods such as ice cream) to have on hand.  Examples might include dark chocolate, almonds, or kale chips.
  15. Take a hot bath.
  16. Find a moment to be alone and “get away from it all” or, if you are an extrovert who thrives on the personal interaction, talk with someone you love.
  17. Practice guided imagery.  Imagine being at the warm beach while breathing in the salty air. 
  18. Strive for a positive attitude or what some call an “optimistic explanatory style.”  Seeing those challenging moments in life as times of learning or unique opportunities, and maintaining an optimistic outlook will go a long way, and can certainly play a role in your physical health as well.
  19. Keep a journal in which you write down your feelings about your chronic illness.  This can be quite cathartic.
  20. Keep a journal in which you write down that of which you are grateful.  

On this final note, at this time of the year which is exciting for some while quite lonely and hard for others, you are urged to share how grateful you are with others.  I am thankful for each of you reading this as well as the many ENS friends, ENS-knowledgeable physicians, and special people I have met in my ENS journey.  Have a happy holiday and, again, be sure to tell those people in your life who are you thankful for just how much they mean to you.



Best Wishes,
Chris Martin  
Author of “Having Nasal Surgery? Don’t You Become An Empty Nose Victim!”

 

 
The health tips in this newsletter constitute non-professional advice and do not represent the official position of ENSIA.  It is always recommended that you consult with a healthcare provider for your medical needs.  Should you have any suggestions, feedback, or concerns or issues you would like us to address, or thoughts on ENSIA, please do not hesitate to contact us at info@ensassociation.org.  

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