Dear <<First Name>>

You are receiving this email as a member of the HAEi Youngsters Community and because you have previously taken part in activities connected to the youngsters! 

Newsletters will be sent regularly, sharing information about current projects, upcoming events, and patient stories from the global HAE community! 

We want to make sure that you are always the first to know, and that you stay connected with your international friends!

Here is what's new in May

Resources for Kids

New children's book about HAE
Motivating Lives is part of the HAE PERU KIDS project, which arose from the need to raise awareness and spread the message about HAE in families, especially among school-age children.

Read or listen to the book here!
Activity Books
The Brady Club Activity Book aims to help children better understand, manage, and cope with their disease while offering fun ways for them to feel inspired, empowered, and connected to other kids in the community.
Each activity book includes HAE facts, fun jokes, stories from kids in the HAE community, fun activities to complete at home, and more!
Download the spring edition here!

HAE Friends Around the World

We are happy to inform you that the HAEi Youngsters' Advisory Group is launching an outreach program HAE Friends Around the World that aims to create connections and friendships around the world, sharing the benefit of being part of the global HAEi Youngsters' Community. 

Youngsters from the Advisory Group will be reaching out to youngsters internationally via social media to say hello and provide opportunities for youngsters to connect and learn from each other. The Youngsters' Advisory Group hopes to build relationships, share experiences, and increase knowledge about HAE. 

If you know of any youngsters in your community who might be interested in joining an international network of friends, please let them know they can follow the HAEi Youngsters' Community. 

Youngsters can get in touch with us via social media or email – find out more on our website:

You can read more about the HAE Friends Around the World program here!

hae day :-) on 16 May is just around the corner


With hae day :-) on 16 May coming up shortly, we encourage everybody to take part in HAEi’s hae day :-) activity challenge and raise awareness of HAE across the world.

Right now people from 35 countries are participating and entering all types of activities – physical activities and those helping overall wellbeing. You can also share photos of your activities, earn badges, and join a team if you want to. Like previous years, the activity challenge runs to the end of May.

New this year is the feature of joining a team, and guess what the HAEi Youngsters Community has its own team! Join us there and let’s raise awareness together.


We look forward to hearing from you – thank you for being part of the HAEi Youngsters' Community!

HAEi Youngsters' Advisory Group

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HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America


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HAE International (HAEi) · 10560 Main St Ste PS40 · Fairfax, VA 22030-7114 · USA